Thank You for coming to our 2012 gala event, we really appreciate the donations and all the money you’ve spent.
Duchenne Muscular Dystophy is a disease that waste muscles and ultimately makes the boy’s not able to walk, so we’ve used the money you donated and given it to scientists and told them were sick of all the talk.
There is an exciting treatment called Exon Skipping that patches the Gene and gives the boys and their families the most hope, now let’s pray in 2013 the FDA gets out of the way and does not continue to act like a bunch of dopes.
My family this summer attended an MD conference in Florida with a lot of Duchenne boys who were already in chairs, and I can’t tell you how proud I was of my daughters who flirted with these teens and gave them a reason to smile and cheer.
After the Conference,
Ryan started asking a lot of questions as you would expect a 10 year old boy to do; he wanted to know how much longer he had till he was like the older boys and if there was anything that I could do.
I told him with tears rolling down my face that we do not know what the future might hold, and then he gave me a giant hug and he did not ever want to let go sertraline 100mg tablets.
Ryan’s friends are the children of people in this room and I do not have to point out who you are, I just wanted to thank you all and let you know that your kids are shining stars.
He was once again the manager of a football team that had a lot of headaches, the coaches again let Ryan run the last point in and really all I can say is Thanks!
He continues to play Hockey in the Sabres league for kids that are under eight, but that allows me to be on the ice to help him and that really makes him feel great.
We designed a product called ShtankOut that will help a lot of charities including Juvenile diabetes as well as Duchenne, My kids and their friends helped design it and soon they will be pushing it to all their friends.
I love you all for being here and helping us in any way you can, so let me say a prayer for other’s and not just for my little man.
God Please help all those in need because the numbers are so great, and try to stop the suffering before it is too late. Amen.
Have a Great night and Thank You from the Bottom of my Heart!